Personal Data Protection in Social Sciences in Big Data Era

Predavanje na dogodku "Big Data: New Challenges for Law and Ethics, International scientific conference, 22 - 23 May 2017", Institute of Criminology at the Faculty of Law, University of Ljubljana, Ljubljana, Slovenia (2017)

Avtorji:

ŠTEBE, Janez
BEZJAK, Sonja
BOLKO, Irena
SLAVEC, Ana

Povzetek:

The development of digital technologies fosters new types of data, research approaches and methodologies as well as significantly increased the amount of data interesting for social sciences. However, it also raises severe legal, ethical and quality issues. The Social Science Data Archives at the University of Ljubljana (Arhiv družboslovnih podatkov - ADP) is involved in the SERISS (Synergies for Europe’s research Infrastructure in the Social Sciences), international project that connects leading European research infrastructures. In one of the tasks the ADP together with project partners conducted the literature review on how social media data (Twitter, Facebook, Snapchat, etc.) is already used in social scientific research and how legal and ethical challenges are discussed in the field. Based on 20 years of experience in data curation and preservation we identified questions related to different phases of the research data lifecycle. Since social media data is not created for research purposes, one of the main issues is obtaining participants’ informed consent to reuse data. Consent is no longer requested only by research ethics committees, but it will become a requirement with the implementation of the new GDPR. Although social media data is often publicly available, researchers don’t have an explicit informed consent to collect and analyse their data nor that can they link it with other sources or reuse it beyond the original purpose of data collection. As a data archive, ADP is particularly interested in finding a legal solution for data to be stored, curated and disseminated in the long term. Several questions arise, from determining data ownership to time limits for data storage and documentation, as well as to enable researchers to link data from different provenance (e.g. official statistics, social media data, historical and health data). The research community needs to recognise the gap between research interests and laws and ethics policies, and find a balance between research freedom and the protection of respondents.

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To delo je ponujeno pod Creative Commons Priznanje avtorstva mednarodno licenco.

Povezane vsebine:

 AKTIVNOSTI ADP
3. april 2019 | Fakulteta za družbene vede, Ljubljana

Delavnica ADP: Iskanje in uporaba raziskovalnih podatkov s področja družboslovja

11. april 2018 | Kardeljeva ploščad 5, Ljubljana

Delavnica: Pravni in etični vidiki ravnanja z raziskovalnimi podatki, 11. 4. 2018

 KONFERENCE IN DOGODKI
6. september 2019 | Zurich, Švica

20th International Conference on Social Sciences

22. september 2019 | Ribno, Bled

Mednarodna statistična konferenca: Applied Statistics

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ADP je del Inštituta za družbene vede na Fakulteti za družbene vede. Sredstva za delovanje ADP je zagotovil ARRS v okviru infrastrukturnega programa "Mreža raziskovalnih infrastrukturnih centrov Univerze v Ljubljani." ADP je član združenja evropskih arhivov družboslovnih podatkov CESSDA. © ADP (ISSN 2385-9415) | 1997 - 2017 | arhiv.podatkov@fdv.uni-lj.si